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Around 160,000 Australians die each year, and 120,000 need Palliative Care.
While most of us will at some stage in our lives be affected by this statistic, many of us do not understand what Palliative Care is.
Margaret, Leanne and Mariam cared for their loved ones at home.
They represent a range of diverse backgrounds and relationships and provide recognition and validation of unique caring perspectives. Based on a simple Q and A approach, the videos offer authentic lived experiences which may assist in addressing the concerns or questions of others entering this caring role.
Watch their stories:
Leanne describes some challenges of caring for her father and the benefits of palliative home support.
Mariam reflects on the carer focused support she received to care for her husband at home.
(Arabic subtitles)
Margaret contemplates some ways Palliative Care supported her husband’s wish for End of Life at home.
As part of the Moments That Matter campaign, three MCM clients and carers have shared their experiences, and many of their reflections focus on the support provided by our Palliative Care service.
Read their stories:
Christine and Matt are in their 60's, and met each other nearly four years ago. Since then, both have been diagnosed with terminal cancer.
Christine has advanced breast cancer, and Matt has Non Hodgkin’s Lymphoma.
"The palliative care team has seen and done so much that the ordinary person like me doesn’t know. They walk alongside and support us. They don’t take over. I can call them at any time and don’t feel like I am a burden to them."
Watch Christine’s video on the Moments That Matter website.
Shirley’s mother, Gwenda, died of advanced dementia in aged care.
Consultancy support by specialist palliative care gave Shirley and the aged care staff the confidence and advice they needed to fulfill wish to die at the aged care facility and avoid admission to hospital.
"They were brilliant. Marion (a palliative care nurse) explained what was happening physically to Mum and what to expect as her condition deteriorated, so we were fully informed. Her compassion and empathy were outstanding... Having access to them any time, day or night, gave me the courage to stay true to Mum’s wishes."
Read Shirley’s story on the Moments That Matter website.
John is 80 years old, and the recently bereaved partner of Margot, his wife of almost 60 years. Margot had renal failure and wanted to die at home.
Palliative care made it possible for John to care for Margot for eight months and to die at home.
"The palliative care people have the right sort of humanity and pass on their expertise to the carer. They made it easier for me to care for Margot."
Watch John’s video on the Moments That Matter website.